Exciting News: A Fresh Look and New Topics for Our 2024 CLA Newsletter!
We hope this message finds you well and thriving. As we step into a new year, we’re thrilled to announce some exciting changes to our
VASCERN-VASCA Consensus Statement: Sirolimus and Fertility
This document is based on the statement elaborated by ASPHO SIG (The American Society of Pediatric Hematology/Oncology Special Interest Group) and CaNVAS (Consortium of iNvestigators of Vascular
Emily’s Story
“Emily is my strength, my hero, and my Warrior!” Written by Kayleigh, Supporter, United Kingdom “Emily is my strength, my hero, and my Warrior!” Updated
2024 MDBR T-shirt Design Contest
Unleash Your Creativity for a Cause: Join the MDBR T-shirt Design Contest! Introduction: Calling all artists, young and old, to pick up their tools and
Join the Global Campaign for Life: Rare Disease Day
Rare Disease Day serves as a pivotal occasion that mobilizes global endeavours to increase awareness and advocate for individuals affected by rare diseases. This year,
Embark on the Journey of Awareness: EURORDIS Photo Award 2024
Celebrating the Grit and Strength of the Rare Disease Community We are thrilled to extend a special invitation from EURORDIS-Rare Diseases Europe, an extraordinary non-profit